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I am really tired of all of the problems associated with hep c. I read on the net that liver transplants are a very serious and invasive. Recovery Is sometimes a year or longer. Rejection is quite common and not something to take casually. Peace be with you brothers and sisters, I pray for you please pray for me. Im 45 now and was ment to start on treatment back in March of this year but I was told just b4 I started the medication I was told I cleared the virus by myself.
I've been tested twice and the doctor,s are saying that the virus is gone from my body is this possible. I was gino type one but I can feel my body getting rid of the hep c it's like my body is going through a detox getting what's left of this virus. I hope my story can help someone else. Just wait a year I was told new drugs are coming on trials all the time. FF a year and I was put forward for Mavaryet May 22, Just wondering if anyone that took the cure Harvoni?
Had their hep c come back?? So did blood test and bam. Sooo tired and sore. Anyways not looking for a aw poor guy just tired get mad when I wake up. Hope no one else has had this come back after being told You r vured?
I have had hepatitis symptoms since March when I received a blood transfusion in the Philippines after a serious accident in which I lost a lot of blood. I have been sick with the symptoms of a serious hepatitis like infection ever since. Subsequent blood tests showed that I am negative for hepatitis B and C, but I was exposed to hepatitis E, which is self limiting. However, I have never recovered from this illness.
In fact, I have been sick on virtually a daily basis ever since then. Liver specialists here in Seattle tell me that there is nothing they can do for me. My liver enzymes are always elevated and I have the other symptoms of a chronic hepatitis C infection. Your assistance in this matter would be greatly appreciated. Changed my diet, no drinking. Because of my age the Dr recommended a transplant. On the list over 10 yrs, got on Harvoni, doing really well, got liver cancer which was cured imidiatly.
Put top of the list had my transplant the eve I took my last dose of Harvoini. It will be 3 yrs. Sept I am Hep C free, perfect liver. Weight gain is from lack of exercise, my opinion. Sally H May 16, I've had hepatitis C about 8 years now my number stayed at a non alarming rate.
Keep in mind when the doctor told me my numbers I never understood what they meant. However it came across to a great doctor that I have I would be a great candidate for harvoni since my numbers are not that high she said I would only need 8 weeks of treatment. I've had my final blood test in my account is at zero which is wonderful now in October she said they will blood test me one more time and that will be the final time but don't let nobody for you out there you can re get it.
Yes I will not lie I got mine from injecting heroin however what is on the rise today is people getting it from using dollar bills straws and sharing with others if you are ever going to sniff something make sure you have your own straw to not use money it's disgusting and do not use anything of anyone else's under any circumstances.
I don't remember ever having any symptoms. Thankfully I quit drugs in my teens and resumed life, not knowing I was infected. Fast forward about 18 years later, I decide to donate some blood. A month later I received a letter from donation place, saying I tested positive for hep C antibodies and to make appointment with doctor. About 3 blood tests later, it was confirmed I had hep C.
They did a fibroscan on my liver, showed fibrosis and scarring. My doctor decided that I needed treatment to prevent further liver damage. I was so scared and anxious at this point, I thought I was going to die. Thankfully I have good medical insurance. Was able to start Harvoni medical treatment. I started treatment in early December. I was officially virus free in February.
In August had one last blood test. Confirmed that I was officially hep C free! I was so happy. A year later, doctor wants my liver checked again.
My liver has improved and is now actually healthy! I abstain from alcohol and try to eat healthy and be active. I'm so grateful for science and medical technology. Emily E May 13, diagnosed in 96, probably was infected around ish.
After A very long fight i got prescribed Harvoni. I Am so grateful to get this opportunity, I thank God, it wouldn't of happened any other way. Just started my new medication im on week 2 now.
I feel grateful knowing the success rate is very high. No more drugs or unsafe acts for me! Then in VA did it again for another 49 weeks, And I lost another 70 pounds and thought I was going to die, I was so sick, but in 6 months hep c came back, so I thought was it I'll just die because I won't go thru another treatment like that. Then I fell and broke 8 ribs on my right side and I could not hardly get my breath, that was October The VA said it was called Harvoni and it would not make me sick, I thought sure I thought they were lying to me again, but I said I would try it but if I start getting sick I was going to quit the treatment, But 6 weeks later in April the teatment was done and Hep C was gone, They check my blood every 6 months And about 1 month ago I had my by yearly check up and still no sign of Hep C , So that Harvoni worked well, but I was told that those pills are very very expensive.
Back then they hadn't dealt with this virus. I did a year on Interferon with no success. I got really sick in and did 48 weeks of Victrelis, interferon, and Riboviron. I was clear of the virus after 12 weeks but It didn't kill the Hep C. In I did 12 weeks of Sovaldi and Riboviron. Again, the virus came back. Again the virus came back.
In I did 12 weeks of Vosevi and halfway through my doctor added Riboviron. It was a Success, I am clear of Hep C after 3 months from treatment. My message is-- don't give up, there is hope. You can be cured. Living with this virus has been tough. I discovered I had the Hep c in Recovering from my addiction at the same time, being who I was, very paranoid, obsessive, i researched and diagnosed myself with a number of things associated with hep c. I amplified what little, if any symptoms I had into life and death scenarios.
Liver cancer, cirrhosis, etc.. I think part of me romanticized the idea of dying an early and tragic death. This is my sixth year with hepatitis C. Now if I could only get rid of this monkey on my liver We only have today, we only have each other. And we are pretty great. Apr 24, I have Hep C geno 3 most likely for 54 years 1st time liver was elevated was in I'm at stage 2 I think I'm holding up pretty good.
I'm 67 years old I have not drank are used drugs for 35 years. I have been through treatment 2 times the past 3 years both failed. Feel pretty good now that I'm juicing beets, carrots, celery and a bit of apple every morning. Fish, chicken and as much food with omega 3 as possible. Milk thistle and turmeric 2 a day. I stay thin I do not over eat and make my liver work its butt off. I have found that I don't need to be pig to stay healthy. I spend as much time I can in the presents of the Lord.
That's is the real reason I think I'm only at stage 2 after 54 years. Waiting to see if they find a cure for geno type 3 let me know if you hear of any breakthrough type 3. I think I m doing pretty good. As man thinks in his heart so he is. I feel like I am playing Russian Roulette every single day. Spin the Barrell, Pull the trigger Scared Stupid Apr 20, I was diagnosed with hep c virus, 3 years ago from the V.
I wasn't in pain nor did I have any noticeable sytems.. Skip forward to NOW My moms a nutritionist -- homeopathic, natural cure advocate. She introduced me to eat right for your Blood type. By Dr peter J. O, B, A, AB. Each Blood type has certain foods that are beneficial or avoid, for each person's Blood type..
Make it a life style, it will improve your health in most if not all areas. It works I am living proof. This is my testimony.. NOW let's go into micro nutrition.. First Probiotics are essential for optimum health, they destroy the bad flora in our stomachs a must have, 7 strand minimum..
Antioxidants , are free radical destroyers. Free radicals destroy healthy cells and promote disease. Again these are just a couple of antioxidants there are many.. Other vitamins you should have. Not to overwhelm anyone, Ill stop here. Keep in mind, there are alot more in good health food stores.
Also all people are different, so please do you research, you'll find Whats best for you. I am in no way selling or pushing this knowledge on anyone. So please read, research. I was diagnosed with stage 3 liver cirrhosis, with a very high viral load.
I thought I would die soon, or before I wanted.. I was stunned as were the Doctors. My lver enzymes were. Apr 20, I know it is hard to find the doctors who care enough to help u get the right treatment for you but since I have moved to my.
Jimmy M Apr 15, I recently was diagnosed with hep c. Not sure how I got it, could have been from getting a tattoo or drug use. Today is my first day on Mavret. I don't have symptoms except for my belly being swollen. I'm trying to eat healthy and can't wait to rid my body of this horrible disease. Lori B Apr 14, After reading a few of the stories I feel very lucky to have fallen into the circumstances the way I did. To be honest, I feel ungrateful after the few stories I did read. I started using drugs heavily in high school and moved to IV opiates in college.
Obviously, I was unaware at the time but after moving to Dallas 6 months later, I found out. The doctor called me the next day and I cried for about an hour sitting in my truck. It all finally caught up to me but the worst part was my dad was dying from liver cancer at the same time. It was like I could see my future and it shook me up pretty bad.
Which would not cover any medical costs while living in Texas. I had to move back home but it was a blessing in disguise. Watching my Dad die 2 months later gave me the strength to finally put down the needle. I was 28 and literally that next month Sovadbi and Daklinza, used to treat Genotype 3, started clinical trials. All I had to do was stay clean for 4 months and I could start the 3 month treatment Then by chance found out about it 6 months later I knew the girl who I contracted it from btw.
Finally, one month after I moved home and quit using there was a cure, not previously available, for Hep. Negative to this day and much more grateful after hearing others' stories. Hope you find this and it helps, if only a little. Apr 14, My story is I lost my husband June 11th due to hepatitis it was the most horrifying thing that I've ever witnessed.
I never left his side to the day he took his last breath as for myself I get tested every 3 months because I was exposed to it so my hepatitis is showing up reactive so all I can do is take it day by day blood test by blood test but one thing is I can't stop living my life because this disease.
It is curable so please get tested and do something about it don't let this disease kill you and take you from your family and your friends like it did my husband. I miss him terribly I think about him every morning and every night none of this is worth your life! Also if you know someone that has hepatitis whether it's your friend family member neighbor whoever please do not judge this person they need help not judgment!
Amen Kelly Webster Apr 9, I found out in 2 years married she freaked I could not figure out how I contracted Hep c I did Interferon treatments for 6 months liken to Cancer Treatments Did not work Tried again 5 years later could not finish Then Harvoni 3 months into treatments Divorce 3 months later cured..
I just finished a 12 week course of Harvoni treatment. During the 3rd week of treatment the viral load was already clear in the lab work. I see the liver specialist again in 3 weeks to get the result of the second panel of bloodwork and viral load results and ultra sound.
My first ultra sound pretreatment showed a liver with very little scars. I personally believe I have had HepC for about 40 years but it was inactive. Which kept me from ever knowing. Over the years many doctors told me my liver level was high but never suggested further testing or even said a word about HepC. In I noticed little changes, such as; skin itching, feeling tired, slight insomnia, fast weight gain that would not come off.
I didn't understand it. I went to 8 different doctor's because none of them knew or even looked in-depthly. I went to my last doctor and told her. She was the only doctor that knew it was HepC and did lab work. I immediately went on treatment and here I am. I will be under the doctors watch for the next year to see if I stay HepC clear for 1 year.
That's when I will have reached Sustained Virologic Response. For a 12 week treatment. Their is a year post Harvoni recovery from the antiviral drugs very strong clearing of the virus.
Its nothing difficult during recovery. Right now I'm hopeful and I am with every person searching for healing. It's a process and I know it can feel lonely at times. People don't understand that have not been there. Seek your healing and work to improve the best you can. Thank you Jem H.
I was living in a shooting gallery in a basement apt. With a group of fellow junkies, sharing one surenge and sharpening the needle with a match book striker, heroin, cocaine, speed. And barbiturates and more, heck we even shot up Methedone. Kind of hard to hide that. Doctor put me right into a Hospital for weeks. So anyway still have some Hep C in the old blood and will be starting this new drug out in May. Terrence Mccu Mar 22, I just started Mavyret a few weeks ago.
Don't know why I put it off so long. I guess it's good that I waited actually since the older drugs had worse side effects and costed alot more. My boyfriend of 17 yrs and I both had HepC. He also had HIV. The HIV you'd think would be the scariest one but he dealt with it like a champ, pretty much almost undetectable viral load after 20 yrs.
His Dr wrote papers about him. Anyway a couple years ago his liver was finally causing problems but since Harvoni was so expensive it took too long to get approved. He died a couple days after finally getting approved. When your liver is failing and your abdomen fills with water, I know it's uncomfortable but my bf opted for the procedure where they make a small hole in that impossibly thin delicate membrane that surrounds your organs, so he could manually drain the water.
Then he poked around and when he bent over he felt it split apart. You can't live when it tears open. So he was in horrible awful pain, too much to be awake for. He died within 2 days. My point was, don't you get that procedure, having a belly full of water isn't pretty but it's better than what he went thru.
I think it's called peritonitis.? So I was left with almost a full months worth of Harvoni, figured I'd need them. That was a couple yrs ago before these new HCV meds. I have medicaid and thought maybe they'd be less likely to deny me if I already had half of the regimen But I've got Mavyret. So fortunate it's easier for ppl to get treated.
I can't believe people are still not getting the meds It's cheaper to treat it now than when yr liver fails. In my town you just go to the low income medical clinic and they'll get you started. There are SO many ppl wanting treatment that they first set you up with a group appointment to explain everything. Oooh Star Trek is on, I've gotta go now Lydia G Mar 21, I was wondering if anyone had any answers regarding what I've been going through the last month?
My husband has had hep c for 15 years due to past drug use, he's is clean now for years. A little Over a year ago I was pregnant with our 1st son and made sure to be tested and came back neg. Out of nowhere a month ago I became really itchy and went to my Dr and he did blood work. He called me a few days later and told me to go straight to the ER because my blood work was really bad across the board specifically my liver function.
Got the call a few days later I tested positive for hep c. I've never done drugs or shared tattoo needles with him so they said it was odd I contracted it from him. Went to a specialist , at this point I'm very jaundice, itchy, weak, short of breath.
Specialist said they have never seen someone get hep c and in a year it do what it's doing to me. So my questions are has anyone else experienced such bad symptoms so quickly? Is there anything I can do to make these symptoms not so bad? As I have a small child and can't be bed bound all day everyday.
I waiting on more extensive test results but the waiting is driving me crazy. I'm terrified it's something worse than just hep c and I can't get through most days I feel so horrible. Any feedback would be greatly appreciated!
Alicia P Mar 20, I finished epclusa march 2. Went for my blood work still waiting to here if i am cured, i am sure it worked there is a spot on my liver had a cat scan and a mri they still dont know what it is going to find out more this week they are not ruling out cancer.
The treatment was easy some headaches tiredness. Now I have joint pain and rashes very confused has anyone experienced this,would like to no Robin E Mar 19, Hi , my name is Nageshreddy,from India my age is 33, when I'm in college time I know iam with Hapatitis b positive,from last 12 years I'm taking alcohol and smoking,since from that time I did not experienced any type of symptoms in my body , now I'm getting red rashes on body with irritating itchy skin.
I went to the dermatologist and phgysian , some blood test will done doctor say some liver infection is there in body and given medicine but taking medicine from last 40 days but it not curing ,and one more thing I did not experiencing any of hapatitis problem like stomach pain, lower abdomene pain, vomtings and digestion problems what I need to do and suggest me for best treatment and what will avoid?
Nageshreddy G Mar 18, My story begins with a heroin addiction. I was years old when I was diagnosed with hepatitis C genotype 3. I was still in active addiction when I received the news. I was so young and oblivious to what life really was. I am now 26 years old, almost 3 years clean. Being HCV positive is one thing that still hangs over my shoulders.
It is so heartbreaking to go to doctor after doctor to find out that 1. My insurance will not pay for it. If anyone has any feedback or are in a similar situation please let me know. I am currently still hepatitis c positive genotype 3, but I am not giving up on finding a way to get treated. Anonymous B Mar 15, i was called in june of from where i had lab work done for being a cna, the specialist that called me asked me to come in because sometime of another HEP C passed through my body.
Please help me to cure it. Mar 11, I was diagnosed in only because I asked for the test Mainly due to a couple of blood tests where my LFT was elevated. My GO thought I was maybe drinking a tad to much I asked her to test me as I had had a transfusion in after a traumatic childbirth. I was gutted at the positive result this meant I had been walking around for 35 yrs with Hep C totally unaware of the damage it has done to me. I have had Hep C for about 20 yrs now that I know of.
I didn't wanna do the coctail of interferon an ribirin, due to all the bad side effecrs. I also did alternative Meds like I seen someone e on here say their cured now from. I never known of anyone that was cured from Hep C from homeopathic remedies. The disease is undetectable at times, but always comes back!. I'm now on mayret, an half way thru with no side effects! So please do it now!
Don't wait like I did! There is cures an with out side effects! I thank God everyday I am able to be on meds that will cure me! I'll let you all know how I am in the next 4 weeks. This is an 8 week program. Mar 7, I have been carrying the bug from Years of being weeker and weeker Test adter test the i asked the doc test me for hep c i had a transfusion from a motorcycle Crash in 81 So finely i found c positive interferon and riv what a hard time working 12 hours a day in the oil reated industry After 90 days it was back crushed lost and scared started savolti and riv again 90 day pisitive again.
It it has beat my but Most of all cause you feel good you still Need your body to heal and listen to your Inter self slow down get rest and eat proper There is nothing worse than a physical set back cause you have not gained your strength No matter was other may say they dont know What its like they tend to assume oh no bug Now there lazy and want to rest and there cured but your body still needs to heal once the drug has done its job.
At the time my doctor had the wait and test every 6 months plan but like most people I wasnt hurting or having any effects from this until Im a musician and living that lifestyle where theres a lot of drinking and drug abuse eventually caused me to start having the upper right quadrant pain.
In Dec of I went back to same doctor and we started the 8 weeks of Harvoni. For me it was rough guys but I have other health issues that played into my side effects. I was seriously nauseated and threw up almost every day the first 4 weeks. Took Zofran for that which worked. Now that Im 20 days off the meds I still feel drained and as everyone basically has said I have a headache that will not totally go away.
I use Naproxen for that. I spoke with my doctors nurse and everything Im feeling has been reported so I am so grateful I took Harvoni.
Im hoping things will improve and Ill get back to life after Hep c. Bill M Mar 2, I wish I could get help. Am hepatitis B positive since December up now, And still under medication called enticaver 0. Ngbangaragbe s Feb 23, I contracted Hep C in marine corps boot camp from the air gun shots. I have been fighting the VA for decades. The VA put me on Harvoni and ribovarin. I had no side affects and the virus was not present after 4 weeks.
Yes I did 12 weeks to make sure it was gone. My liver had chirrosis- not anymore. Those of you infected got the Harvoni it works.. Warren Demartini Feb 16, I had hep c for at least 20 years, we think probably more.
I did ribaviron and interferon treatment 7 years ago and it didn't work. Last year I did 12 weeks of epclusa treatment and it seems like the virus is gone. What is bothering me is my immune system seems to be weakened now. When I was young I had allergies that had gone away over the years. The allergies have come back. I have also caught 4 colds now in 5 weeks this winter. I had not had a cold for 20 years before this.
I'm glad the hep c is gone but if I feel sick all the time it isn't really any different. My doctor said my liver function is still good, so I don't feel I am any better off. David Gibson Feb 14, I am on here, specifically to answer two letters - one from Millie , the retired lady who was told she needs 40 thousand dollars worth of medicine and Ahmed, whose wife and son need to be treated.
It is appalling that you must have this money to be well. That being the state of things for now, we have to find out what to do. Please contact several, very good university hospitals - Vanderbilt, Johns Hopkins, Cleveland Clinic or some closer to you and ask them if they are able obtain the drugs free of charge from the the pharma company on compassionate basis.
If one tells you, no, go to the net and the next. You will be talking to human beings and you're trying to resolve a problem together. Most people will want to help if they can.
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And, at age 30, I was still a virgin. When I was young I had allergies that had gone away over the years.
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